History

The History of The Genesis Fund

The Genesis Fund was formed to provide funding for children with special needs. We strive to ensure these children, who often have multiple disabilities, receive not only expert medical care but also coordinated comprehensive care.

Comprehensive care includes making referrals to the best medical specialists, coordinating multiple appointments, organizing therapeutic programs in local communities, and having sufficient time to answer the many questions that parents have regarding their child’s condition and care.

This is not an easy task to accomplish. Most of these services are not covered by insurance or third party payers, and they are very costly. To cover these costs The Genesis Fund raises money through special events, corporate giving, and personal donations.

The first major event held to benefit The Genesis Fund was an evening with legendary dancer, Rudolph Nureyev. A concert by the great tenor Luciano Pavarotti soon followed and later, an unforgettable Gala at Filenes.

Subsequently, The John Havlicek Celebrity Fishing Tournament, Welch’s/Yaz Legends Golf Tournament, the KISS108 concert, and the Children’s Miracle Network Telethon were added to our impressive roster of benefit events.

That was just the beginning. Today there are many wonderful events raising money for The Genesis Fund. See our Events page for details.

The success of The Genesis Fund can be credited in large part to the invaluable efforts of our Board of Directors. Initially, the board members were from the local media, and now corporate executives and sports legends have joined this illustrious group of dedicated individuals.

As The Genesis Fund’s event calendar has expanded over the years, more and more programs to help these children and their families have evolved as well.

The Feingold Center for Children innovated a system for coordinating multiple appointments so that the patients are seen by more than one specialist at the same visit. Satellite clinics have been established in various New England communities, thus limiting the need for these families to make frequent trips to Boston.

Therapy and the Performing Arts programs have also been added in many New England communities. Participants receive not only therapeutic benefits but also have fun while doing it.

The Pregnancy Exposure InfoLine was established to answer the questions of concerned prospective parents regarding potential effects that environmental agents might have on their unborn baby. This free service now receives an average of 200 calls per month.

The Genesis Fund makes it possible for these much needed programs to exist; programs that otherwise might not be available to these children and their families.

The need for these programs remains strong and it is even more essential that the Genesis Fund continues to fulfill its mission to help children with birth defects, intellectual disabilities, and genetic diseases.